6th Edition of World Nursing Science Conference 2026

Abstract

Hemangioblastomas are highly vascular, benign tumors of the central nervous system that frequently occur in association with von Hippel-Lindau disease (VHL), a hereditary condition characterized by multisystem tumor development. Genetic composition, clinical spectrum, and neurosurgical management of hemangioblastomas, have strong correlation with VHL gene mutations. These tumors most commonly affect the cerebellum, spinal cord, and brainstem, often presenting with symptoms related to increased intracranial pressure or neurological deficits.
From a nursing advanced practice provider’s perspective, early recognition of symptoms and family history is essential for timely diagnosis and intervention. Genetic counseling plays an important role in patient and family education, particularly in patients with confirmed or suspected VHL. Neurosurgical resection remains the primary treatment, requiring careful perioperative nursing management to monitor for complications such as hemorrhage, edema, and neurological deterioration.
Postoperative nursing care focuses on neurological assessment, pain control, rehabilitation, and prevention of complications. Long-term surveillance is necessary due to the risk of tumor recurrence and development of additional lesions in VHL patients. Surveillance is achieved by routine MRI scans to identify additional tumors. Advanced Practice Provider also play a vital role in coordinating multidisciplinary care, providing psychosocial support, and educating patients about lifelong monitoring and disease management. Overall, a comprehensive, patient-centered nursing approach is essential to optimize outcomes and quality of life in individuals affected by hemangioblastomas and VHL disease.
References: Klingler, JH., Gläsker, S., Bausch, B. et al. Hemangioblastoma and von Hippel- Lindau disease: genetic background, spectrum of disease, and neurosurgical
treatment. Childs Nerv Syst 36, 2537–2552 (2020). https://doi.org/10.1007/s00381-020- 04712-5